RESOURCES
The Sam Schmidt Paralysis Foundation does not endorse these resources. They are for your information and we ask that you research them to determine if they fit your needs. Have a suggestion for a link we may have overlooked? Please let us know.
AbleNet
Link: http://www.ablenetinc.com
AbleNet is an international company and industry leader in providing educational and technical solutions to help children and adults with disabilities lead productive and fulfilled lives.
AbleSea.com
Link: http://ablesea.com
Disability Community Forum: Providing Help, Resources and Information to everyone.
Access Anything
Link: http://www.accessanything.net/
"Go Anywhere; Do Anything!" Products listed on the website have been tried and tested by Access Anything staff. Also, check out their very comprehensive Links page.
Adaptive Sportsmen, Inc.
Link: http://www.adaptivesportsman.org
"Our mission is providing recreational opportunities for physically challenged people."
American Association of People with Disabilities (AAPD)
Link: http://aapd.com
The American Association of People with Disabilities (AAPD) is committed to organizing the disability community to be a powerful force for change economically. AAPD fulfills this mission through its career and leadership programs for all individuals with disabilities
American Spinal Injury Association
Link: http://www.asia-spinalinjury.org
The mission of the American Spinal Injury Association is:
(a) to promote and establish standards of excellence for all aspects of health care of individuals with spinal cord injury from onset throughout life.
(b) to educate members, other healthcare professionals, patients and their families as well as the public on all aspects of spinal cord injury and its consequences in order to prevent injury, improve care, increase availability of services and maximize the injured individual's potential for full participation in all areas of community life.
(c) to foster research which aims at preventing spinal cord injury, improving care, reducing consequent disability, and finding a cure for both acute and chronic SCI.
(d) to facilitate communication between members and other physicians, allied health care professionals, researchers and consumers.
APACURE
Link: http://www.apacure.com
The facts on Central Nervous System Disorders (Spinal Cord and Brain).
Apparelyzed - Spinal Cord Injury Support
Link: http://www.apparelyzed.com/
Australia for All (International Accessible Travel)
Link: http://www.australiaforall.com
www.australiaforall.com is an international web site devoted entirely to accommodation and tourism venues which are accessible to people with disabilities. As a community service obligation inclusion is free to all tourism providers who meet our accessibiity criteria.
BeautyAbility
Link: http://www.beautyability.com/2.0
On BeautyAbility, you’ll find blogs on disability-related current events, feeling pretty, amusing rants, adapted fashion reviews, a disability podcast and a dating column, Dating on Wheels.
Best Friends Pet Care and Training
Link: http://www.bestfriendspetcare.com/
Best Friends Pet Care in Indianapolis offers service dog training. Indiana is one of the remaining states that allows a person to train their own dog, through a knowledgeable trainer, to be their own personal assistance dog, which saves time and money. When clients are fully involved in the training of their dogs they build a better and closer bond to the dog. Dogs are brought from day one training all the way to full certification as a Service Dog. For more information, contact Kristi Rush via the Best Friends website.
Brain and Spinal Cord Injury Resource Center
Link: http://www.brainandspinalcord.org/
"Our mission is to be the most reliable, timely and complete resource on the Internet for brain injury and spinal cord injury survivors. Our hope is that this site will become relied upon as a trustworthy resource for the comunity and for those who are searching for information."
Brejcha Personal and disABILITY Resource Site
Link: http://www.netreach.net/~abrejcha
Mottos I live and lecture with:
- "If what you have doesn't work, work with what you have!";
- "Focus on what you do have and are able to do -- not on what you don't have or can't do!"
And most importantly: "Affect has a very real effect!"
Bret Neylon's Race to Recovery
Link: http://racetorecovery.org
July 18, 2009. Brownsburg East Middle School, Brownsburg Indiana.
Benefiting the Bret Neylon Paralysis Foundation, Inc.
The Bret Neylong Paralysis Foundation is committed to improving the quality of life for people who suffer paralysis as a result of spinal cord injuries. Monies will go to support spinal cord research and to assist paralyzed individuals with financial support for rehabilitation, medical costs, and assisting devices.
Bryon Riesch Paralysis Foundation
Link: http://www.brpf.org/
Offers scholarships and grants. Site includes many useful links.
Canadian Paraplegic Association
Link: http://www.canparaplegic.org
For over half a century and in every corner of Canada, CPA has assisted survivors of SCI to cope with the changes caused by their injury, regain independence and live, productive lives. CPA achieves these goals through counselling, by creating educational and employment opportunities, and by heightening awareness among Canadians of the challenges faced by people with SCI and the abilities they possess.
Canine Partners for Life
Link: http://www.k94life.org
"Making the Miracle of Greater Independence Possible."
Caring Bridge
Link: http://www.caringbridge.org
Connecting family and friends when health matters most.
Chair Flights (previously Mobility Air Transport)
Link: http://www.iflymat.org
People IN Chairs Transportation (formerly Mobility Air Transport) is dedicated to providing air travel for people who use wheelchairs, but cannot or do not fly on commercial airlines. Fares will be priced comparable to standard airline coach fares. (Not flying yet; currently raising money to buy first airplane.)
Chloe Magazine
Link: http://www.chloemagazine.com
A full scale magazine for women who are disabled, published with the intent to showcase the positive impact that women with disabilities are having in the workforce and in the community.
Clearwater Marine Aquarium, Clearwater Florida
Link: http://www.seewinter.com
"Clearwater Marine Aquarium’s mission is to restore and preserve our marine environment. We accomplish our mission through leadership in education, research, and the rescue, rehabilitation, & release of marine life." Clearwater Marine Aquarium is home to Winter, the famous dolphin with a prosthetic tail.
Clinical Trials.gov, a service of the U.S. National Institutes of Health
Link: http://www.clinicaltrials.gov/ct2/results?term=spinal+cord+injury
Information on current and past clinical trials.
Determined to Heal
Link: http://www.determined2heal.org
"Simplifying Life with a Spinal Cord Injury". Check out the sections on Role Models and the Spinal Cord World.
disABILITY Information and Resources
Link: http://www.makoa.org
Lists of resources and useful information.
Disability World "web magazine"
Link: http://www.disabilityworld.org
A bi-monthly web-zine of international disability news and views.
Disaboom
Link: http://www.disaboom.com
Connecting the millions touched by disability.
Disaboom Jobs
Link: http://www.DisaboomJobs.com
Search on-line for jobs.
Fitness Mentor - Online Fitness Guide
Link: http://www.fitnessmentor.us
Fitness Mentor: your personalized training solution. "Be the very best you can be!"
Florida Gulf Coast Paralyzed Veterans of America
Link: http://www.floridagulfcoastpva.org/
The Florida Gulf Coast Paralyzed Veterans of America (FGCPVA) is a 501c(3) non-profit veteran service organization dedicated to improving the lives of veterans who have a spinal cord injury or disease. FGCPVA provides services to member veterans, their dependents and all Americans with disabilities.
Freedom Shores Accessible Resort
Link: http://www.freedom-shores.com
Freedom Shores is a 100% wheelchair accessible hotel, restaurant, bar, palapa, beach resort located on the Yucatбn Peninsula in the state of Campeche, Mexico. The hotel has nine rooms with a total of 22 beds. We have two chefs and nurses aides are available 24/7.
Freedom's Wings International
Link: http://www.freedomswings.org/
Freedom’s Wings International is a non-profit organization which provides the opportunity for persons with physical disabilities to fly in specially adapted sailplanes.
Gary Karp, Speaker/Author/Trainer
Link: http://www.lifeonwheels.org/
Gary Karp is an author and speaker who very personally understands how people integrate and adapt following traumatic change. A wheelchair user following a spinal cord injury he incurred in 1973 at the age of 18, Gary has produced four books, written extensively as a disability journalist, and speaks to a wide array of audiences across the U.S. at universities, rehab centers, business, government, and conferences. He is known for his passion, clarity, and humor as well as his dazzling juggling skills! In 2007 Gary was inducted into the Spinal Cord Injury Hall of Fame as a disability educator. He is sponsored in part by the Christopher & Dana Reeve Foundation.
Genetics Policy Institute
Link: http://www.genpol.org
The Genetics Policy Institute (GPI) is a leading promoter and defender of stem cell research and other cutting-edge medical research targeting cures. They are the catalyst and provide leadership to the Pro-Cures Movement, an influential global network of stakeholders' from patient-advocacy, science and industry.
GettingHired.com - Careers & Community for People with Disabilities
Link: http://www.gettinghired.com
GettingHired.com is the largest national employment and networking portal connecting job seekers with disabilities, employers committed to hiring job seekers with disabilities, disability services and career services departments at colleges and universities across the country, agencies providing services to the community of people with disabilities, and disability advocacy groups.
Gillette Children's Specialty Healthcare
Link: http://www.gillettechildrens.org
"Where kids with disabilities come first!" Look for the interactive Spinal Cord Map on the website.
Goodwill Fitness Center of Orange County, California
Link: http://www.ocgoodwill-fitnesscenter.org
At the Goodwill Fitness Center, we believe that every person, regardless of physical disability or health status, can benefit from a comprehensive exercise program. There are currently about 70,000 people in Orange County, CA living with physical disabilities, and the number grows each year. If you’re one of these people, there has been no fitness center in Orange County to serve you – until now.
GoSchichi - Taking Mobility Offroad
Link: http://www.goshichi.com/
Taking mobility offroad. Finally, a four wheel drive vehicle adapted for a wheelchair.
Homebound Resources: A Community of Caregivers
Link: http://www.homeboundresources.com
Ideas, solutions, web links, people and organizations to help make anyone's home healthcare situation a little bit easier.
Hope Inc.
Link: http://hopeinconline.org
The vision of Hope Inc. is to enhance the quality of life for children who are physically and mentally challenged and their families. Through a variety of programs, HOPE aims to assist and empower these children to achieve their full potential.
I Believe Inc.
Link: http://www.ibelieveinc.org
"Providing Awareness through Humanity"
ICORD (International Collaboration on Research Studies)
Link: http://icord.org/research/research-studies/
ICORD Research page, including studies underway around the world.
Independent Living Research Utilization
Link: http://www.ilru.org
We create opportunities for independence for people with disabilities through research, education, and consultation
International Campaign for Cures of Spinal Cord Injury Paralysis (ICCP)
Link: http://www.campaignforcure.org
ICCP is a body of affiliate not-for-profit organisations working to fund research into cures for paralysis caused by spinal cord injury. ICCP members represent many of the leading spinal cord injury research fundraising charities around the world. The ICCP website offers a wealth of information about spinal cord injury, current research and ways you can help to discover the cures.
International Center for Spinal Cord Injury at Kennedy Kreiger Institute
Link: http://www.spinalcordrecovery.org
"Research, Restoration, Recovery"
For many years, conventional wisdom held that most improvement from spinal cord injuries occurred in the first six months of recovery, and that improvement was impossible after two years. "Rehabilitation" focused mostly on teaching patients how to compensate for injuries thought to be irreversible. Conventional wisdom was wrong.
The International Center for Spinal Cord Injury (ICSCI) at Kennedy Krieger was founded on the philosophy that individuals with paralysis can always hope for recovery of sensation, function, mobility and independence, even many months or years after their injuries. The Center welcomes adult patients, but may be particularly beneficial for children. The first facility in the world with a unique focus on rehabilitation and restoration for children with paralysis, the Center has concentrated its efforts on a group of patients whose bodies’ natural tendencies to grow and repair makes them even more likely to benefit from intense rehabilitation.
International Vent Users Network
Link: http://www.ventusers.org/
International Ventilator Users Network's mission is to enhance the lives and independence of home ventilator users and polio survivors through
education, advocacy, research and networking.
IZ Adaptive Clothing
Link: http://www.izadaptive.com/
Women's clothing specifically designed for seated clientele.
JobEnable
Link: http://www.jobenable.com
Connecting Disabled Employees with Employers
Life Rolls On (LRO)
Link: http://www.liferollson.org
Life Rolls On Foundation (LRO) is a non-profit organization dedicated to improving the quality of life for young people affected by spinal cord injury and utilizes action sports as a platform to demonstrate what is possible despite paralysis. LRO strives to assist and inspire others through quality of life programs, spinal cord injury education, and direct outreach to individuals and their families at the onset of injury.
Mobi-Chair
Link: http://www.mobi-chair.com/
The Mobi-Chair is a high quality, amphibious rolling beach chair that provides a seamless transition from boardwalk-to beach-to water.
Morgans Wonderland
Link: http://www.morganswonderland.com
Morgan’s Wonderland is the World’s First Ultra Accessible Family Fun Park designed specifically for children and adults with special needs, their family members, caregivers, friends and the entire community.
National Alliance for Accessible Golf
Link: http://www.accessgolf.org
Working together to increase participation of people with disabilities in the game of golf.
National Family Caregivers Association
Link: http://www.thefamilycaregiver.org
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.
National Rehabilitation Information Center
Link: http://www.naric.com
National Spinal Cord Injury Association
Link: http://www.spinalcord.org
Includes resources listed by state.
NTAF - The Leader in Fundraising Assistance and Support for Transplant and Catastrophic Injury
Link: http://www.ntafund.org
NTAF's mission is to help transplant and catastrophic injury patients and their families afford critical but uninsured medically related expenses through fundraising guidance and patient support, as well as financial and other resources. NTAF is a 501(c)(3) nonprofit organization that provides expert fundraising guidance to patients, families and communities nationwide, while offering fiscal accountability for funds raised.
People on Wheels
Link: http://www.peopleonwheels.org
"A News and Information Helpsite for People who use Wheelchairs. Our job here is to provide a central information outlet for those who share many of the same health issues. And, in addition, to provide everyone with a better understanding of the needs and issues attendant to wheelchair use."
Quadriplegic, Tetraplegic and Paraplegic peer support and information
Link: http://www.apparelyzed.com
Spinal cord injury peer support.
Radio Bug, Inc. (Internet radio)
Link: http://www.radiobug.net/index.html
A voice for the disabled community.
Ross Daniel Adaptive Apparel
Link: http://rdadaptiveapparel.com/
Fashionable, functional, seamless socks for AFO wearers..."Fashionable Solutions for Special Needs".
SCI Hope Fund
Link: http://www.scihope.org
HELPING YOU GAIN INDEPENDENCE ONE STEP AT A TIME
SCI Info Pages
Link: http://www.sci-info-pages.com
Social Security and Disability Resource Center
Link: http://www.ssdrc.com
The Social Security and Disability Resource Center website provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration.
Spinal Cord Central
Link: http://www.spinalcordcentral.org/
Spinal Cord Central is a new web-based resource on all things related to spinal cord injury and dysfunction (SCI/D).
Operated jointly by both National Spinal Cord Injury Association (NSCIA) and United Spinal Association, SPINAL CORD CENTRAL has been created specifically for members of the SCI/D community who are seeking information and resource referrals.
Spinal Cord Injury Information Network
Link: http://www.spinalcord.uab.edu
This website offers educational materials and information on services of the UAB Spinal Cord Injury Model System (UAB-SCIMS) along with links to national organizations, government agencies, commercial products, and educational resources related to spinal cord injury.
Spinal Cord Injury Information Page
Link: http://www.1800wheelchair.ca/news/post/spinal-cord-injury-info-page.aspx
Collected by 1-800Wheelchair.ca, this website includes medical terminology and resource links. (SSPF thanks Sarah H. for forwarding this link to us.)
Spinal Cord Injury Resource Center
Link: http://www.spinalinjury.net
With information, chat room, message boards, classified & book list.
Sports & Spoks Magazine
Link: http://www.pvamagazines.com/sns/
Dedicated to the delivery of exciting content to the wheelchair sports and recreation community.
Stairlift Advisor
Link: http://www.stairliftadvisor.co.uk/
We aim to make the process of buying a stairlift easy, smooth and stress-free.
Stem Cell Action Network
Link: http://www.stemcellaction.org
"SCAN" is a grassroots, volunteer group of patients and their families and friends.
Their purpose is to build a community of the patients, family and friends who may one day benefit from the treatments produced by stem cell research (SCR), and empower and mobilize that community to advance SCR.
StepNow
Link: http://www.stepnow.org
"Stepnow.org is a site set up by individuals around the globe whose lives have been affected by spinal cord injury. The purpose of the site is to explore and develop global plans to aid in the fight for a cure for paralysis. This is a site that aims to go beyond politics, beyond national boundaries and cultures – a site whose task in hand is to support all viable and promising research leading to clinical trials and ultimately to a cure. Wherever you are in the world, and whether you have a spinal cord injury or are a family member or caregiver, this is your site. You are invited to take part in it in whatever way you can."
TAMCO FOUNDATION
Link: http://www.tamcofoundation.org/nb/home.html
TAMCO Foundation is a 501 (c) (3) non-profit, non-partisan charity which provides direct support to military veterans from Florida who have been severely wounded and disabled while serving our country.
The Art of Healing, massage therapy
Link: http://www.artofhealingky.com
Debbie Joplin, Owner and certified and licensed massage therapist is on staff at the Louisville School of Massage where she works with students in the clinical setting. She is also nationally certified to work with Special Needs people and has a client base that includes those with such health care issues as Multiple Sclerosis, Cerebral Palsey, Post-Polio, Quadraplegia, Reflex Sympathetic Dystrophy and post-surgery problems.
The Kids Equipment Network
Link: http://www.tken.org
The Kids Equipment Network (NFP) provides durable medical equipment free of charge, to children in need who have little or no medical/insurance funding. Our goal is to serve children with special needs from birth through age 21, providing the necessary tools to achieve their highest level of independence. TKEN accepts “gently used” medical equipment (walkers, wheelchairs, etc) and refurbishes the equipment for those in need.
The SCI Ring
Link: http://tbi-sci.org/
The Spinal Cord Injury Zone
Link: http://www.thescizone.com
The Spinal Cord Injury Zone has information and
resources for people living with Spinal Cord Injury (SCI). The Spinal Cord Injury Zone includes, Spinal Cord Injury News Updated almost Daily with the Latest Spinal Cord Injury News Articles. This is the place to find the latest Spinal Cord Injury News and stem cell research. The Spinal Cord Injury Zone Information Knowledge Base! Information about Spinal Cord Injury can be found here. Updated Often! At The SCI Zone Links Page you can find links to anything Spinal Cord Injury related.
The Standing Company
Link: http://www.thestandingcompany.com/
The Superstand Standing Wheelchair is a very unique piece of equipment. It will allow someone who is normally confined to a seated position in a traditional wheelchair, to STAND UP (and stretch out) with ease and safety ... at any time ... in any place.
Therapeutic Adventures, Inc.
Link: http://www.taonline.org/
"The premier provider of adaptive outdoor programs and specialty services for persons of all ages with differing abilities – (physical and developmental) disabilities, chronic medical impairments and other special health needs."
Thisabled
Link: http://www.thisabled.com/
Where people with disabilities help each other.
Versa AccessWear
Link: http://www.versaaccesswear.com/
Versa AccessWear merges fashion forward design with construction elements suited for women with limited physical mobility.
Wilderness Inquiry
Link: http://www.wildernessinquiry.org
Wilderness Inquiry (WI) provides integrated outdoor experiences for people with and without disabilities to facilitate the adoption of healthy lifestyles, promote full community inclusion, and kindle awareness and appreciation of the natural environment. WI offers more than 100 canoeing, kayaking, and hiking trips throughout the U.S. and in other countries each year.